Public Genomics Database

The way clinical trails are conducted and the data they collect are about the change. A new consent form, Portable Legal Consent has been created to allow your genomic data to become part of a new public database. The goal, if you sign the form, is that any time your genetic data is collected for a test or clinical trial, the genetic data will be sent anonymously to the database to help researches find cures for diseases. The consent is anonymous, but mistakes happen, so if you have any concern, don’t sign it. For those less concerned, the database hopes to collect 25,000 donors the first year, but will need at least 10 times as many to be useful. Think of it as one of the longest term big data projects ever – The Economist.

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